One more post - really cannot dwell on this topic long, too painful.
We returned with a list of DON'Ts:
1. Cannot keep exercising - SE had been obsessively doing jumping jacks, yoga, stretching at every opportunity. As a family, our opinions were divided... of course exercise is normally good and should help give her a healthier appetite. But she was exercising non-stop, even getting up in the middle of the night to exercise in the toilet. It broke my heart to see her already-skeletal leg being lifted up and down on our shared bed when I woke up at night.
2. Cannot go swimming - I mentioned to the doc SE is very determined and would swim multiple lengths. She was shocked and said swimming shouldn't be allowed in her condition.
3. Cannot go on the walk to get JE from school - same reason
4. Cannot help with cooking - SE was starting to like helping with food preparation. Doc says this wasn't advisable as we don't want her to be focused on food.
SE was miserable that basically ALL the things she liked doing was now prohibited.
The DO: Follow a diet plan of 3 daily meals and 3 snacks, and send pictures of every meal to the dietitian.
Lunch/dinner was to be 90g of protein and 100g of rice with vegetables. The first time, we were surprised to find that 90g of meat was considerably more than her usual amount. Since then we have realised some styles of cooking makes the food look more substantial than others.
SE hated everything.
Ah, both my comments disappeared. Praying 🙏 earnestly that SE will eat more and gain back the weight that she lost.
ReplyDeleteThanks. I have been on a mental roller-coaster for months. A few times there were improvements then the situation plummeted back down.
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